Archive by Author | donna

two weeks already

Still watching that clock, the calendar. 11pm tonight will be two weeks ago.

In a flurry of organization, dismantling, signatures, returns to the funeral home, ordering the headstone, closing of accounts, so many documents and in the midst of returning to active work 2 days after my dad’s funeral – busy followed by exhaustion is my newest normal.

I believe I am starting to feel a more complete or delayed sadness, of the loss of both parents – not nearly as close as so many others predicted. I hated hearing ‘when one goes, the other will soon after’ as if it wasn’t something we feared on our own, with ever having to utter those words.

It’s an odd experience, to look at things we were still trying to organize such as clothes, paperwork, etc. and now trying to figure out how to close it all out. Time consuming, draining, and eye-opening.

I am feeling the absence – of phone calls, multiple phone calls and voice mail messages; some very clear and concise yet others of confusion or delusion. I am expecting to schedule my visits to Manteno, with no less than 2 days off in between. This past weekend came and went, and both Joe and I were thinking the same thing – that which one of us were going to visit on either Saturday or Sunday. We tried to assure that he never had a weekend day without at least one of us there. And some days, 2-3 might be there at the same time and I know, my dad was the happiest. Feeling a bit of regret as my dad did say to me on the Saturday before he passed, before he so quickly declined – that he wanted visitors. ‘Bring them on’ was his tone.

Cards of condolence are still coming in. Friends from far away or others just learning about our loss. Still, so many people to reconnect with, to let them know – how they impacted my dad’s life in a good way. How much we appreciated how they saved my dad’s life, helped to rehabilitate him just enough, how they counseled him, and us – and so many others that came into my dad’s life (and ours) to make a difference where they could.

Flowers are starting to dry or die. But they’ve continued to warm our home and spirit and my dad would have loved them all. The beautiful plants as well, that will live on and we can share with each other. The beautiful cards, gifts, donations on my dad’s behalf – so very much appreciated.

Thank you for being there for us, for him… in whatever way you might have been.

 

 

 

went back to say goodbyes

My dad’s main nurse Tara is relocating and her last day is Friday. I wanted to be sure to see her in person beforehand. A friend thought it would be too hard for me to go back to the VA home, after last week. It was not. I didn’t think it would be.

I explained and I was reminded when I did arrive – that this was ‘home’ for my dad. And although he didn’t cut his own grass or make his own meals, this is where we hung out with him for nearly two years. Everyone is treated well, the entire family.

I brought some desserts to contribute to Tara’s going away lunch, and wrapped up some bottles of wine for her and a few others. I brought a few mass cards and one of my dad’s caps (one I got him in Charleston, SC) we had saved to give to Bob – his friend down the hall who sat at his bedside for a couple of nights..

It truly was comfortable being there. No hesitation or knots in my stomach…like those we had last week. What was sad, was knowing I would not likely be returning there soon. While I did say that I would give manicures for the ladies again before Easter, I just won’t be able to do so. Maybe another holiday down the road.

 

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early June 2015…

What was sad – was saying goodbye to a couple of staffers; seeing some of them men I saw so often who hang out in the hallways to watch the birds and squirrels. This was a chapter ending – not just for my dad’s life – but for this part of our lives and being connected to some seriously compassionate people.

 

 

A final toast …

At my dad’s wake, we toasted him with his favorite wine. My husband stood next to me in case I could not read this, but I did. And he thought I should post what I had to say that evening.

Sharing a bit of insight on our dad.

There is so much to say, people to acknowledge – those who have been there for my dad, for my mom, for us, for so long. So many of you have already lost your parents, and just a few have yet to experience this level of grief. This is not easy. This is not a relief. It’s just the beginning of the true loss. An old friend sent me note last night — that losing one parent is a comma, but losing a second parent – that is the period.

Over the years, my dad (and mom) have buried so many others before them. Best friends, brothers and sisters; sometimes family or friends so much younger than they were.  They had helped relatives with arrangements in the past, and sometimes, closing the eyes of someone who had just passed. My dad missed his cousin Kevin Casey so very much. I did not have the heart to tell him that we learned Kevin had passed way, just prior to my mom. He would have been devastated. It saddens me that people who genuinely care about one another, lose touch over so many years and life changes, distant or even nearby.

So very sad was that my dad lost his mom when he was only 9 years old. She had suffered with tuberculosis and you can guess what they may have been like in the ‘30s. He still remembers her and has identified with other children that have been in/out of our lives who have lost a parent. Two of my dad’s aunts – Kate and Mayme raised him. And I do remember them. What wonderful Irish women those Rowan sisters were.

My dad’s favorite color of clothing was beige, or tan, or brown. Until recently, we didn’t dare buy him anything blue, as he would be reminded of parochial school uniforms. For such a long time, he wore suspenders. And because he did, he felt Eric should as well! He did most of the decorating in the house; even hanging of pictures – the odd positioning of framed photos, etc. on the walls – well, he wasn’t going to have a show on HGTV, though he enjoyed watching them, esp. Property Brothers.

How he loved animals and children. He would be brought to a huge smile with any child, stranger or family, just like the rest of us. He looked so forward to having great grandchildren one day – and was over the moon about his two grandsons – Eric and Cory, 17 years apart. They moved hell and high water to get back home from Florida, driving straight through to meet Cory on the same day he was born. When Eric was born, my dad had started a new job the same day that I went into labor. So, he left work to get to the hospital, and I met him in the elevator because they were sending me back home. Earlier in their lives, they were young and healthy enough to enjoy numerous outings and activities with Eric, including serious babysitting as I had a full-time rotating work schedule and managed another 1 or 2 part-time jobs as a single parent. Even with Cory, 17 years later – they still would enjoy a lot of time and activities with him.

All animals, cats, dogs, birds – he loved. He could never understand hunting. Neither can I. He could not bear seeing an animal suffer in any way. Beyond wildlife, my dad said goodbye to so many of his own 4-legged family members. As far back as I remember, there was Boots when I was a toddler (who they never admitted the true story of his ‘running away’ until only several years ago); there was Chipper the Parakeet, whom I believe may have been the reason for the disappearance of Boots. Then so many others but those I recall the most – Nippy (the former show dog French Poodle) given to me by my Aunt Betty. Nippy loved her daily coffee and occasional spaghetti. Then there was Pokey who was part of our lives when Eric was small. There was Holly – the out of control Basenji who spent her days tearing down drapes and terrorizing my mom. Then Sparky, the German Shepard/Husky who had spent his days prior tied to a stake in someone’s yard. Oh, how Eric loved Sparky to pieces. Then there was Tillie, who was adopted with Cory in tow, to help choose her alongside my parents. We don’t believe in purchasing dogs from a breeder – we believe in rescuing them from a foregone conclusion.  Tillie – she was the last dog my dad said he would ever have. Tillie would need to outlive him. She did not. So today, Tillie’s ashes are with my dad, forever. Though he said that he would never have another dog, ever – then came Dolly, in late 2012. Dolly had about 5 different names in her first week until one was settled on, so he could sing ‘Hello Dolly’ to her. Her adoption was to help my parents better cope  with the unidentified disease raging inside my mom. Every dog, he loved even more then the last, though he swore he never could. Dolly spent the afternoon with my dad just 2 Saturday’s ago – with our Rico in tow. Then there were a few cats along the way. Petusch, the rescued cat left in a field inside a shoebox to die – that my mom brought back to life. The handful of kittens I would sneak into my bedroom and hide; until my mom would see their tiny paws peak under the door while she was vacuuming.  Then of course there is Sassy. The runt of all cats, who shocked my mother when she realized an abortion would be required before they could take her home from the shelter. My mom felt she was far too young to have gotten pregnant. Both Dolly and Sassy are with us now, and have been since my dad’s tragic fall at home.

My dad had many cars; he loved cars. There was a year however, that he was getting a bit carried away as I think he changed his mind 2-3x. He was often critical of others’ driving, because as we all know – he was a ‘professional’ driver and you can’t tell them anything! In these past months or so – my dad was convinced that he would drive again, and even had purchased a Buick – one that Cory had took him shopping for. He even called 911 once (or twice) to report his car stolen. He thought I was just nuts not to believe him.

My dad had a thing, before he was never be able to eat again. Every time he left the house, especially if Bob or Joe were in tow, he’d have to stop at White Castles or somewhere for a hot dog. It was like he was on a road trip, yet he may have only been going to Menards.  He was banned from a local Menards some time ago, for making too many returns/exchanges.  I thought he didn’t like when I shared that story, but he would just sit back and smile.

My dad loved making his own breakfast. For the past few years, cream of wheat was his thing. A huge hot, hot, hot pot of coffee. I had finally found him a thermal carafe that kept the coffee hot for 12 hours. He liked dessert, too. He was a diabetic chocoholic.

He loved his Charles Shaw Merlot, sold only at Trader Joe’s. He even talked some of the staff at the VA Home to go out to Orland Park to try it for themselves. Just more than a week ago, we were able to celebrate his birthday with a little of his favorite Merlot. Hospice advised us to carefully allow him to taste it from a swab. My dad said, “to hell with that” and grabbed the cup from my hand and took a swig. Also on Christmas Eve, at our home – he was able to enjoy a shot glass full, albeit very slow and with several witnesses.  Yet, we knew that anything he swallowed or attempted to swallow could kill him – either by choking to death or by getting the dreaded aspiration pneumonia.

In these past 2 years, my dad has oddly enjoyed us taking photos of him, and sharing them. He once held up a magazine ad for cigars and said to take his photo with it, so we would be reminded of what he wanted for Father’s Day last year.  I’d be mortified if people took and shared photos of me, lying in a hospital bed or a wheelchair, with tubes hanging outside my shirt from my stomach. His acceptance and attitude over these past two years has been nothing short of amazing. Let’s be clear, it’s been hard – really hard. We could not tell my mom about his accident at home. We could not tell my dad about her passing until 3 weeks after the fact. Having to bury one parent while the other was clinging to life is too difficult to describe. Without support of certain family and friends, I don’t know how I got out of bed every day. There have been some days, even recently, I just could not.

My dad was so proud of me and my brother; our homes, our sons. He especially loved my husband, as so many people seem to as well. He first told me that at our wedding. Though he could not dance with me at our wedding because of the forever pain in his feet, he did like to dance. But in that regard, my mom had him beat! She loved to dance and was pretty damn good at it. I recall a few tabletops along the way that she may have climbed up on! My dad seemed to be drawn to Marshall Tucker and Bruce Springsteen (back in the day), but also liked contemporary music. He had numerous CDs that went along with him to Manteno, and some he bought during a couple of our Walmart outings; from Willie Nelson, to Sarah McLaughlin, to Michael Buble and Josh Grobin. He always liked listening to the Rat Pack as well.

My dad was obsessive about his house, and especially his yard. We vowed that we could never live within his eyesight because he would scold us for one blade of grass too long. He has scolded a couple of neighbors in the past. I am sure those younger people or even those who spoke little-to-no English just appeased him. But seriously, the winter of either 2013 or 2014, it had warmed up after a snow in November, so for him, it was time again to cut the grass. Even with his pained feet from diabetic neuropathy, he would plow the snow from some of his neighbors’ sidewalks. He wanted things neat and clean and safe, at least in his view. Always worried about the value of his home, long before we were forced to sell it. But a good neighbor he was – and so appreciated by his.

My dad moved into the Veteran’s Home in Manteno because we had no other choice. We could not take care of him in our home, or his own. His needs were now 24/7 skilled nursing. I firmly believe that while he was at death’s door the same day my mom was buried, that his transfer that night to Lexington Rehab/Nursing was what saved his life. After 90 days in various therapies, it was determined he would need a far greater level of permanent care than he could get with us. The staff at the VA home has been beyond outstanding. The care and family environment was not only supportive, but critical to his well-being and acceptance of his fate.

His fate. To not only ever drive again, or walk again, but to never eat or drink again. Many of you know how difficult that has been for me to accept. I will never understand how he could. Once we got past the overkill of fast food commercials and me turning the channels constantly – I soon found my dad to be watching cooking shows! But he would also crack up at commercials with animals and babies, and at times  binge watched Don Knots movies.

Ironically, my mom’s youngest brother Babe came to the VA home as well – late in 2015. My dad had kind of a awkward  brotherly-in-law relationship with him. ‘Sixty years of being his chauffeur’ he would say, ‘was 50 years too many’. Yet, the first time they saw each other in Manteno, my uncle obviously far more ill than my dad, they reached out to each other immediately and held hands, for quite a long time. When my Uncle died in January of last year, my dad insisted on going to his service.  We hired the ambulance that was required to transport him, just so he could spend a couple of hours saying his own goodbyes, and getting a chance to see other family as well, most he would never see again. Before he left, my dad had me wheel him back to pay his final respects – and said ‘’well, you look pretty comfortable in there Babe!”

Unfortunately, my dad did not reap all the benefits of the VA home. He was alone in his room through 3 meal periods daily. He was rushed out near the end of Bingo games because of Pizza, desserts or other treats that were brought in by the sponsors. He never went to the VFW outings where the guys would get dinner and drinks, on the house – almost weekly. So, lack of socialization was a factor of being on a feeding tube.

My mom, the love of his life. I never felt that I honored her passing with the depth it deserved, as we were preparing to lose my dad as well. So, for me, I may be losing her all over again, because now they really are together, “side by each” as my dad always claimed that he wanted to be.

My dad had a few crushes at the VA home. He lost a few filters as well. He had a wife, or maybe it was a couple of sister-wives! But they all loved him. Those were his friends, his family. The staff, more than his fellow veterans. When one of his few favorite nurses, Pat, resigned last year – my dad was devastated. I found him crying hard outside one day, saying he felt like he lost his mother all over again. Pat was likely younger than me, but that is how they felt, about each other.

We celebrated my dad’s 85th birthday on March 14th. We were happy to have been able to see him enjoy 3 birthdays since his fateful accident. Who knew. Who knew that we would say our final goodbyes just a week later. In recent weeks, he was declining in ways that were very subtle. But that last hospital stay in January was the one that deemed Hospice care was going to be the next step, as he had recovered from that last round of double pneumonia, when we didn’t think he would.

During that stay, and as sick as he was – he still found some humor. No longer wanting to live or be treated with continued insulin, blood pressure checking, etc., he would tell this one nurse Jackie, as she listened to his heart and lungs – that he must be dead already, because he was looking at an angel; or that why is she bothering to check because dead people don’t cough. He called out to my mom a few times, that he was coming and he couldn’t wait to see her. Seriously, I thought he was going to die laughing when I was there overnight with him and at about 4am, he advised me that he decided who is funeral director should be – Joe Pesci. He had us both cracking up but within seconds I was hitting the call button and screaming for help because he could not breathe. And yet again, he survived.

In closing “A Funeral is not a Day in a lifetime – it is a Lifetime in a Day”.

 

music we drove by

River, by Leon Bridges  (performance)

the official video

My dad wanted a parade. He was always saying he’d likely have only a 2-car funeral. So many had gone before him. My too-late ideas for that were not going to work out; a bit of Mardi Gras style. He enjoyed New Orleans and the liveliness of their funerals and honor of those who passed. Yet, I’ve had this CD for months and can listen to this song over and over. And we did.

During the funeral procession, I belatedly tried to text everyone I knew was there behind us, to send this link to listen along with us.

Oddly enough, I said nearly 30 years ago, I would never ever count cars for any man again. Though yesterday we did. I lost count at about 23.

P.S. I think I am going to try to learn this on guitar.

the day has come…

The wake. Just about 12 hours from now, or so. We see my dad in a different environment – one that I’ve dreaded. What I hope is that we can make this a special send off for him.

This is not a relief. This is not easy. This is not normal, for me.

Our choices were made in total consideration of my dad: what would he have liked, or been more comfortable with. Not to impress others, but to pay tribute to him. And remember my mom as well, as I feel that the real mourning for her has been a bit postponed. Until now, of course.

We got special permission to do a wine toast to him early Sunday evening at the wake, as long as a priest is there. I guess otherwise, police could come in and fine the funeral home! So, there will be a little wine tasting/saluting and some non-wine wine as well.

I’ve done about all I could in looking through more than 60 years of his/hers own photo collections as well as my own. We were to present up to 100 photos for a video loop but we opted for a few less. I am spent. I am sad. I am exhausted but can’t sleep. I am overwhelmed. I am disgusted with some levels of service by those in the service business, and overjoyed with others. I set myself a deadline to stop gathering photos. I guess I am not so good at deadlines. I wanted to read something that I wrote at the services, but I don’t think I will be able to do it. I want to give my dad a really nice send off, but the clock is ticking.

I need just one more day. Just like at Christmas. I need one more day, please.

 

 

 

 

that better place

We said goodbye to my dad last night about 11pm. I am guessing minutes prior, but…

We knew with a 2-hr interval of morphine, things would progress quick. They told us hearing was the last thing to go as far as senses. We witnessed that for sure. When my cousins Lou and Dave were with us during the day, we would see reactions on my dad’s face to our conversations, telling stories, laughing. Deep inside, he was laughing along. Even at some points, lifting his hand as if he wanted to say something. While we watched for those visible signs of dying (the mottling), we watched for signs of life at the same time. The wrinkled forehead or perked eyebrow when he was not just listening to voices but hearing words.

Just a couple of hours later in the afternoon when my cousin Frank came to visit, those signs were no longer evident. He may have heard something from us trying to reach him, but most likely – he was being called somewhere else by then. I told him a few times that it was okay, that mom was waiting for him and it was okay to go to her. Bob and Eric were at his bedside with him for a few hours as I returned home for a short bit of time. When his breathing changed, it was time to get back and fast. He didn’t die alone, as my mom did. Hospice was not there, just his family. Mona, one of his best nurses came in to confirm though I believe she already. These nurses in this environment – we don’t know how they do this. But thank God they do. They do as much for us as they do for the residents who live there. Then his other favorite nighttime nurse, Gayle, came in to console us and she was crying. She loved my dad – they all did.

His ‘dorm mate’ Bob, sat with my dad overnight a couple of hours the night before, after he returned from playing pool in town. He checked on us and my dad each and every hour these past few days. Then last night when he came back, he saw. He cried. He came and sat with us for quite a while. Went to bed about 1am but wanted us to check with him before we left.

My dad will have that chance I hope, to reconnect with Steve, with his best friend Frank, his sister, his beloved Aunt Maime and Kate  who raised him and so many others he loved..

But first, that better place better have my mom waiting in the wings, 2 strong legs to walk on, a great car to take her on a long drive in, a bottle of Trader Joe’s Merlot wine and a couple of glasses, some chocolate, a bag full of White Castles and the freedom that was ripped away from him more than 2 years ago.

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etd…

It strikes me that the timing of death (and birth) are such inconvenient truths. How do we ask ‘how much longer’ when we already know, no one can say. Everyone needs to ‘plan’ around work, other life obligations, and I just wonder. No one can give a definitive answer. This is not like a sudden heart attack or stroke that takes someone out in a moment. I’m not a physician where my absence may be life threatening to someone; I’m not in a role that my absence will impact in a harsh way, too many others. Maybe just the dogs. That is hard but we’re trying to work around it, round trips and all.  But I don’t look at this as inconvenient. It is a life/work interruption, a necessary one, to be there with our loved one as they have the very last moments of their own life. Ours should not impede theirs.

This process is more lingering. More slow and unknowing. Anticipated changes to the body may not occur.  We may be watching for one thing and another thing is happening that we aren’t aware of. The best estimated time of death is most likely today, or tomorrow. Could be a few more days. It’s like waiting for the train to hit the car. It’s coming, are we prepared, have we said enough, should we have said more?

The morphine started yesterday, more for the ‘hunger breathing’ that they call it. To calm the respiratory system. Then by the evening, the 2 hour interval started, and we all know what that does to the respiratory system. Yesterday, he knew we were all there, he responded in brief, smiled when he heard Bob’s voice, and of course – his most beloved grandsons, Eric and Cory.

Here’s an article or blog about this very same issue of breathing…

While he was very grave yesterday morning to a slightly responsive in the afternoon, he asked for visitors. His immediate family – we were all there. His other angel of a niece (Chris) was there for me as much as for him, even though she visited the day before. She’s been on this ride before with her own parents, and too many others. She knows the meaning of comforting others. She knows what it means to be present, to offer support, in any way she can. She asked me what I was so afraid of. I think maybe because I don’t feel that I properly grieved my mom, that I will grieve the both of them together, and very soon. And feel the loss of both of them, together, more profoundly.

As my brother said yesterday, while we’ve already been grieving along time for my dad – and we all grieve in different ways. The nurses have each come in and told my dad how much they love him, and he heard them. They kissed his forehead. And he heard us, too.

So, if there is any family that planned on seeing my dad and saying your own goodbyes, today would be the day, earlier than later. No phone calls to him please. He won’t answer. We probably won’t either.

 

“condition change”

… is the term used when I got a call from an unknown nurse awhile ago. 102.4 fever, elevated BP, congestion and increased confusion.

Reached out to a hospice nurse (supervisor in call center) to say that according to her notes, if we want to see him, we should get there because he is in fast decline.

At that point, the hospice nurse in charge was pending. But just now got a call, he’s declining fast and morphine is being ordered.

Not a good day…

Just as I started to write this, my dad called. Very confused, just woke up, and wondering if ‘mom’ was working and did she get anything to eat. He was using the nurse’s phone to call me. He realized that he slept a good part of the day, but now at nearly 10pm he’s awake. I anticipate another call during the night. That’s how things go sometimes.

I  wasn’t made aware until today, that my dad’s pain meds were changed about 3 weeks ago. They took him off Norco and put him on Oxycodone. Norco just wasn’t doing it. As well, because he’s been very agitated and confused of late, they increase the dosage and frequency of Xanax. Instead of 0.25mg every 12 hours, PRN, they upped it to .50mg every 4 hours, if needed. I was told that when someone is actively dying, their dosage is increased to the next level.

As confused as he was today about so many things, he very much understood when I told him that a relative had passed away. As soon as I said Leo – he said “Hogan?” Then he mentioned that he used to work with Leo. He was trying to read the mass card I saved for him but would hold it up with his eyes closed. He said he was sorry he wasn’t there for both Leo and Irene. He talked of what a nice man Leo was, and how he knew he went to church daily and more.

So, moments after being sure there were French fries all over the floor, and that a girl was standing at the foot of his bed, he had this clarity and memory about our relative who died on my dad’s birthday, and was buried yesterday.

My dad hasn’t had clothes on in days it seems. That upsets me a great deal. But on a day like today, where he’s had serious trouble with constipation and other issues, I can see why, as he probably won’t be getting out of bed. When he needs to use the bathroom – he insists on using the damn bathroom. That means a lift is brought into the room, he’s hoisted up and rolled over to the bathroom. Presses the call light when ready to be hoisted up and rolled back to bed. One of his CNAs (Sean) who is a great caregiver to my dad, mentioned that he was afraid my dad my get a hernia from these issues and he’s keeping a close eye on him.

I also may have mentioned the serious weight gain. Well, they’re trying to work on that to cut out one of the feedings they give him, from 5 down to 4 per day. I don’t know how fast that could work, but his stomach is extremely distended.

Even in his confusion, he’d hear a voice out in the hallway – recognizing another favorite CNA named Michelle. There’s been some issues with getting him the proper wheelchair. Not just to get around easier, but to accommodate both feet without dropping of one; to have wheels on the side so he can get himself around on his own – when he’s ready again.

OxycodoneThere are a couple of other guys there who keep checking in on him. Other CNAs have acknowledged that he seems to be failing and faster. They have all been so supportive.

I took down some of his St. Pat’s day decorations today but left up his birthday card/sign. I taped it to his door so anyone who wanted to wish him a happy birthday, could do so right there. I am sharing that picture here. Wonder if you might notice something very cute.

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